Indigenous Data Policy
The collection
and use of data on Indigenous health is a highly important
and complex issue. While the Australian Longitudinal Study
on Women’s Health (ALSWH) includes Aboriginal and Torres
Strait Islander women as participants, it was not designed
as, and should not be used as, a source of data about Indigenous
health.
This is because
the Australian research community agrees that research focusing
on ATSI Australians should be conducted in a collaborative
manner and must involve a continual process of consultation
with key stakeholders, beginning at the initial development
stages and continuing throughout data collection, analysis
and decision-making about the uses to which data should be
put 1. The nature of the ALSWH, which is not specifically
conducted within Indigenous communities, has made it impossible
for this process to be adopted.
Also because of
the nature of the sampling frame, research methods and respondent
bias, the data provided by ATSI women in the ALSWH are likely
to not be representative of the experiences and health status
of ATSI women in Australia more generally.
For full
details concerning the ethical conduct of research with ATSI
peoples please refer to the NHMRC 2003 document, Values and
Ethics: Guidelines for ethical conduct in Aboriginal and Torres
Strait Islander health research. (www.nhmrc.gov.au)
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