Indigenous Data Policy

The collection and use of data on Indigenous health is a highly important and complex issue. While the Australian Longitudinal Study on Women’s Health (ALSWH) includes Aboriginal and Torres Strait Islander women as participants, it was not designed as, and should not be used as, a source of data about Indigenous health.

This is because the Australian research community agrees that research focusing on ATSI Australians should be conducted in a collaborative manner and must involve a continual process of consultation with key stakeholders, beginning at the initial development stages and continuing throughout data collection, analysis and decision-making about the uses to which data should be put 1. The nature of the ALSWH, which is not specifically conducted within Indigenous communities, has made it impossible for this process to be adopted.

Also because of the nature of the sampling frame, research methods and respondent bias, the data provided by ATSI women in the ALSWH are likely to not be representative of the experiences and health status of ATSI women in Australia more generally.

For full details concerning the ethical conduct of research with ATSI peoples please refer to the NHMRC 2003 document, Values and Ethics: Guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research. (www.nhmrc.gov.au)

 



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Women's Health Australia homepage about the Women's Health Australia project Women's Health Australia staff Women's Health Australia current events Women's Health Australia surveys and data Women's Health Australia substudies information for Women's Health Australia participants University of Newcastle contact Women's Health Australia Women's Health Australia publications and presentations Women's Health Australia homepage about the Women's Health Australia project Women's Health Australia staff Women's Health Australia current events Women's Health Australia surveys and data Women's Health Australia substudies information for Women's Health Australia participants University of Newcastle contact Women's Health Australia Women's Health Australia publications and presentations


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Last updated:6th March 2007 by Cath Chojenta © Copyright