Data Linkage: Cancer Data

Cancer data from some States and Territories are linked to the Women’s Health Australia survey data for the 1921-26, 1946-51, 1973-78, and 1989-95 cohorts. The 1989-95 cohort currently has its data linked to the Western Australian Cancer data collection only. Each State and Territory dataset is distinct in terms of its data contents and date ranges.

In South Australia only those women explicitly giving consent were linked. In all other States and Territories women who did not opt out of data linkage had their cancer data linked to survey data.

NSW and ACT

  • Cancer data from NSW and ACT were linked in 2013.
  • Opt-outs included:
    • 329 women from the 1921-26 cohort,
    • 796 women from the 1946-51 cohort, and
    • 731 opt-outs from the 1973-78 cohort.

NSW Cancer Data Collection

  • There were 1272 records for 1185 women.
  • The earliest record is January 1994 and the latest record is December 2009.

ACT Cancer Care

• There were 35 records from 33 women.
• The earliest record is 15 August 1996 and the latest record is 15 November 2009.

Queensland

  • Cancer data (1000 records from 891 individuals) from Queensland were linked in 2012.
  • The earliest record is 26 January 1982 and the latest record is 31 December 2009.
  • Opt-outs included:
    • 584 women from the 1921-26 cohort,
    • 804 women from the 1946-51 cohort, and
    • 1089 women from the 1973-78 cohort.

Victoria

  • Cancer data (1954 records from 1645 individuals) from Victoria were linked in 2012.
  • The earliest record is 09 September 1957 and the latest record is 21 June 2012.
  • Opt-outs included:
    • 584 women from the 1921-26 cohort,
    • 804 women from the 1946-51 cohort, and
    • 1089 opt-outs from the 1973-78 cohort.

Western Australia

  • Cancer data (847 records) from Western Australia were linked in 2016.
  • The earliest record is 30 Jun 1971 and the latest record is 13 Jun 2016.
  • Opt-outs included:
    • 356 women from the 1921-26 cohort,
    • 753 women from the 1946-51 cohort,
    • 736 women from the 1973-78 cohort, and
    • 147 women from the 1989-95 cohort.

South Australia

  • Cancer data (214 records from 197 individuals) from South Australia were linked in 2013.
  • The earliest record is January 2000 and the latest record is December 2012.
  • Those who did not give consent to linkage included:
    • 6756 women from the 1921-26 cohort,
    • 4460 women from the 1946-51 cohort, and
    • 6038 women from the 1973-78.

Resources

In addition to the resources detailed below, further documentation (including the Data Linkage Report) will be made available to investigators on delivery of data.

Download File Type
List of the ACT Cancer variables  PDF
List of New South Wales Cancer Variables DOCX
List of the Queensland Cancer Variables  PDF
List of the South Australian Cancer Variables PDF
List of Victorian Cancer Variables  PDF
List of the Western Australia Cancer Variables  PDF