Data Linkage: Perinatal Data

Perinatal data from some States and Territories have been linked to the Women’s Health Australia survey data for the 1946-51, 1973-78, and 1989-95 cohorts. The 1989-95 cohort currently has its data linked to the Western Australian Perinatal data only. Only those ALSWH women who did not opt out of data linkage had their cancer data linked to the ALSWH survey data. Each State and Territory dataset is distinct in terms of its data contents and date ranges.

NSW and ACT

  • Perinatal data from NSW and ACT were linked in 2013.
  • The 1921-26 and 1989-95 cohorts were not linked.
  • Opt-outs included:
    • 796 women from the 1946-51 cohort, and
    • 731 women from the 1973-78 cohort.

ACT Perinatal Care

  • There were 99 records from 74 mothers.
  • The earliest record is 01 May 1997 and the latest record is 29 December 2008.

NSW Perinatal Data Collection

  • There were 5519 records for 2636 mothers.
  • The earliest record is 05 January 1994 and the latest record is 30 December 2011.

Queensland

  • Perinatal data (2384 records from 1471 individuals) from Queensland were linked in 2012.
  • 1089 women from the 1973-78 cohort opted out of the Queensland linkage.
  • The 1921-26, 1946-51, and 1989-95 cohorts were not linked.
  • The earliest record is 15 July 2002 and the latest record is 15 December 2010.

Western Australia

  • Perinatal data (3066 records from 1574 individuals) from Western Australia were linked in 2016.
  • Opt-outs included:
    • 753 women from the 1946-51 cohort,
    • 736 women from the 1973-78 cohort, and
    • 147 women from the 1989-95 cohort.
  • The 1921-26 cohort was not linked.
  • The earliest record is 15 January 1980 and the latest record is 15 December 2014.

Resources

In addition to the resources detailed below, further documentation (including the Data Linkage Report) will be made available to investigators on delivery of data.

Downloads File Type
List of Australian Capital Territory Perinatal Variables  PDF
List of New South Wales Perinatal Variables  PDF
List of Queensland Perinatal Variables  PDF
List of Western Australian Perinatal Variables PDF