Disseminating and Promoting your Results
Jump to a topic below:
- Plain Language Research Summaries
- Social Media
- Requests from journals for information about participant involvement
- Requests from journals for information about data access
- Consent in the 1989-95 cohort
All publications (including those using data from external datasets linked with survey data) must include the following acknowledgement:
The research on which this (paper, book, monograph, abstract or report) is based was conducted as part of the Australian Longitudinal Study on Women's Health by the University of Queensland and the University of Newcastle. We are grateful to the Australian Government Department of Health for funding and to the women who provided the survey data.
Press releases must state that the survey/linked data came from the Australian Longitudinal Study on Women's Health (also known as Women's Health Australia) and that the Australian Longitudinal Study on Women's Health is funded by the Department of Health.
If linked data were used it must be acknowledged that the linkages were done by the Australian Longitudinal Study on Women's Health (also known as Women's Health Australia).
Publishing Linked Data
Please refer to the Requirements for Publishing Linked Data section on the Linked Data page.
Food Frequency Questionnaire
When using the full FFQ or nutrients derived from FFQ (from any survey) Professor Graham Giles should be contacted Graham.Giles@cancervic.org.au and offered the opportunity (or his representative from Cancer Council Victoria) to collaborate in any publications.
Where the food frequency questionnaire has been used, Cancer Council Victoria must be acknowledged with the statement "The authors thank Professor Graham Giles of the Cancer Epidemiology Centre of Cancer Council Victoria, for permission to use the Dietary Questionnaire for Epidemiological Studies (Version 2), Melbourne: Cancer Council Victoria, 1996." Furthermore, all parties are to notify each other before presenting any DQES data at a conference, seminar or other forum, and, where appropriate, must provide copies of the presentation, papers etc. to the Director of the Cancer Epidemiology Centre.
Additional funding agencies should also be acknowledged if this is applicable. The acknowledgement may refer to any other persons who have provided comments, advice, support or other input into the paper, who are not already listed as authors. Permission should be sought from these persons before including their names.
Plain language summaries (or lay summaries) are short accounts of research that are written for members of the general public (and researchers from other fields of study). They explain research to the non-expert. Plain language summaries provide a bigger picture context for the research and show why it is important. They are useful in supporting wider public engagement with research and are particularly important for research in medicine and health.
Plain language summaries support the dissemination of research to patients, participants, other scientists, health professionals and policymakers. They are written so the intended audience can read, understand and act upon the first time they read it.
Below is a link to a plain language summary template. We encourage you to use this template and share your summary. Please email a copy of your summary to our Communications and Engagement Officer for inclusion on this website and in newsletters and social media.
Download the Plain language summary template (Word Document)
The study uses its Twitter profile (@ALSWH_Official) to disseminate outcomes to researchers and NGOs with an interest in women's health research, policy and practice. If you're publishing or presenting at a conference us please tag us in your tweets.
The study's Facebook page presents research outcomes and health-related information to a lay audience. We would be happy to help promote suitably presented articles, videos, or infographics highlighting research results from our survey data.
To discuss content please contact our Communications & Engagement Officer.
Before every pilot and every mail survey all of the participant comments from previous surveys are reviewed. The pilot surveys include an evaluation survey, as well as open ended responses which are taken into consideration when formulating the main survey. Thus participants have the opportunity to comment at every survey and in that sense are heavily involved in survey development. Additionally, the ALSWH provides participants with a free call 1800 telephone number, email and social media channels for interaction with the research team. All concerning comments made in surveys by participants are followed up with a personal phone call from the research team.
Use of the ALSWH dataset is subject to strict ethical conditions due to the personal nature of the data collected. The ethics committees that oversee the ALSWH are the Australian Government Department of Health Human Research Ethics Committee and the Human Research Ethics Committees at the University of Queensland and the University of Newcastle. Ethical approval of the ALSWH specifies that de-identified data are only available to collaborating researchers where there is a formal request to make use of the material, and that each request has to be approved by the ALSWH Data Access Committee. Further details can be found at http://alswh.org.au/for-researchers
In the initial online survey participants indicated their consent to participate in the ALSWH study by completing the survey, consenting to data linkage and providing their personal details, which were validated by the Australian Department of Human Services.
Participants have been informed at each survey that researchers will be comparing their information with that collected in earlier surveys. Completion of the survey was taken as consent. This method of consent was approved by the Australian Department of Health, the Australian Department of Human Services, and both the University of Queensland (UQ) and the University of Newcastle (UoN) Human Research Ethics Committees (HREC). At each wave, participants are offered the chance to win multiple prizes on completion of their survey. This was deemed necessary after consultations with women in the target age group in the planning phase of the study. Each prize draw has been approved by both UoN and UQ HRECs as appropriate compensation for participation. Participants have been and will be consistently informed that participation is voluntary and they are free to discontinue involvement at any time.